Dec 11, 2016 • 6:54 PM
when mucus gets stuck it forms into what looks like poop. You are probably passing stuck mucus. As long as you can pass it - that is great. Otherwise, you many need an enema every so often. My surgeon told me to do an enema once a week or two to make sure I get the mucus out.
8 ReactionsDec 12, 2016 • 2:45 PM
I had my iliostomy in march....I still have bowel movements and there is lots of it..a couple of weeks ago I had bad diarrhea and pains that were unreal with it...I am assuming this is normal...my surgeon is one of those that does the surgery and then tells you to see wound care nurse or primary care doctor...I have seen him once since the surgery and then he dismissed me....I have called his office on occasion with questions and he has never returned my calls....he originally told me that I would have a reversal and now says no way...quite a rude doctor....
10 ReactionsDec 12, 2016 • 6:47 PM
I haven't had mine yet but this does scare me. I am having mine for fecal incontinence and am really afraid of still having accidents post surgery. I wonder if getting the rectum either removed or closed is an option for me. I'm sorry you are dealing with this. Maybe a call to your doctor wouldn't hurt. Although with all the people on here maybe you'll get some really good advice or at least people that have been through the same thing.
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Dec 12, 2016 • 7:00 PM
you do not have bowel movements through your anus. Most are not connected anymore to the anus. It is actually mucus that is getting stuck and forming into what looks like a bowel movement.
There is an ostomy that you still will have bowel movements - I think maybe a loop or something like that. But if you have a regular ileostomy or colostomy, then it is definitely mucus. An enema once a week will help with this.
A lot of times the surgeon will not tell you about the mucus. My surgeon did tell me. I consider this a minor inconvenience. Some of us produce more mucus and some of us less. here is some information on it: http://www.nhs.uk/Conditions/Colostomy/Pages/Complications.aspx
Amptt - if your doctor decides to remove your rectum, recovery is longer. It takes longer to heal because it does not get a lot of air back there. I still have mine and just consider the mucus a little inconvenient. I get rid of it every morning in the shower with a baby aspirator and some pure castile soap and water. I kind of irrigate the area and then I am free of mucus all day.
Dec 13, 2016 • 4:42 PM
Thank you! I have an end colostomy and. I still feel the pressure of having to go and thats when I get the mucous. Now I am also having blood in it and hemhroids. I am definitEly going to check out that website! My surgeon doesn't really deal with my colostomy either. He sent me to wound clinic a couple of weeks ago to get a wound vac(which they decided not to give me after all) and now I'm just supposed to see surgeon in a few months for reversal and weight loss surgery.
0 ReactionsAlin181917 (Inactive)
Dec 13, 2016 • 7:10 PM
In reply to Sheiladianna's comment
If you want a reversal, you can always find another doc that will listen to your needs and call you back when you have an issue
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musiclady1 (Inactive)
Dec 13, 2016 • 8:32 PM
Alin...I don't know what insurance you have but I have medicaid and my GI doctor will not LET me see a surgeon ....you can't get in to see a surgeon without a REFERRAL with most insurance and certainly with medicaid and medicare.....I wanted to have more surgery for the past 8 years....and no one will help me.....I have to live in constant pain......so please don't think people can just call a different doctor...cause it doesn't work that way in the real world......
1 ReactionsJan 18, 2023 • 5:53 AM
In reply to apanda-colostomy's comment
Hi well l had mine done about 16 years ago,long opp 7 hrs,came out with a damaged nerve in my foot still numb feeling now,l was lucky enough to have a reversal,but even now sometimes it leaks big time but not all the time, thing is l have to wear a pad at night or it could be a disaster,positive side is ok through the day although you still go to the toilet alot more than pre colitis days,so unless you have tried every single option delay the opp, you would have thought now days that they would have found a cure, good luck.Ps strange thing is when ime on holiday in Spain far fewer leaks at night, could be the English diet?
0 ReactionsFeb 14, 2023 • 4:46 PM
In reply to Sandy-Colostomy's comment
I just had poop from my rectum. It was actual poop bc it had food particles. My surgeon is one that does surgery sees you once and doesn’t see you again. Well I’m going to make an appointment with him bc it’s not normal to have poop from your rectum. And again YES IT IS POOP
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Dec 18, 2023 • 10:46 PM
In reply to judyfillingame349's comment
I am having same issue and have had my end ostomy done 6 years ago, I have actual poop, dark red blood, smelly mucos and extreme bowel pain and stomach cramps~ all my dr says is need see pain dr and I have but nothing stops any of it, did u get any help yet? Any suggestions? I’m at my wits end so painful and gross. My rectum is intake also.
0 ReactionsDec 20, 2023 • 1:25 AM
In reply to apanda-colostomy's comment
Hi Apanda, I have had my colostomy for 2 years this coming January. I have never suffered from leaks, which is fabulous. It could be because I have a thicker poo most of the time? From reading on this site it seems ileostomies have more issues than the colostomies, not sure why. Has your surgeon told you which type of surgery you are getting?
1 ReactionsDec 20, 2023 • 6:42 AM
After my colon cancer was removed, I had an Iliostomy for a year. Sometimes I felt like I had to poop. I almost freaked out one night when a poop-like golf ball actually came out. Upon closer inspection I could see that while some of it was brown a large portion, maybe the most was actually clear, like hardened gel. My guess was that it was hardened mucous. It never happened again
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Dec 20, 2023 • 7:45 PM
In reply to kewl12's comment
I have had a loop ileostomy for 8 months, and I sometimes poop. Definitely not mucous, actual formed stool.
My surgeon's office said it is normal and can sometimes happen years after the surgery.
I think there is some poop bypassing the ileostomy as the ileum is not completely disconnected in a loop ileostomy and I feel like there is way too much poop to just be leftover stool. And I too have seen food particles. Plus whenever I have gas in my pouch I also get gas in my colon at the exact same time.
Dec 27, 2023 • 6:33 PM
My surgeon said it was normal. I pass stool about once every two weeks or once a month. It hasn’t caused me any problems.
0 ReactionsJan 21, 2024 • 8:25 PM
In reply to deskolnick1966's comment
Did you originally have a temporary or Loop that later could not be reversed? If you did, then it is perfectly normal to have poop through your rectum. Does your ostomy have a mucus fistula (two holes one for poop and the other for mucus) that allows for some drainage? I had my ostomy in 2014 and I do pass actual poop through my intact rectum. It doesn't happen all the time as it depends on my diet. I cannot be reversed because my surgery was due to a rectovaginal fistula that would not heal and my ostomy was done as a diversion. It's alarming but my ostomy nurse and my surgeon says it's absolutely normal in a LOOP OSTOMY which I have.
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